The other one percent

I was going to call my blog “the other one percent” but my sons talked me out of it because of the social baggage associated with those words. I asked him what else I could call it and he came up with life and loss.

The reason I originally reserved that blog name/address is that 1% of babies die FROM NATURAL CAUSES*  between 20 weeks gestation and the first 28 days of life. We in our culture love stats…they make us feel safe if we can just stay on the good side of the stats. As Elizabeth McCracken said in An Exact Replica of a Figment of My Imagination  “Once you have been on the losing side of winning odds, you will never look at statistics the same way ever again”.

I once did a lecture for Nursing students at a smallish private university “how many students go to school here?    “About 2500”.   “If one percent of them died each year, you would attend 25 funerals each year…at least a hundred before you graduated…does one percent seem like a lot now?” .

This photo is of one of my patients…you wont see many photos of my patients because its illegal and immoral to use the images without specific permission.   His name was Paul and I worked with his family for the last months of his mothers pregnancy once we learned he would likely die at birth. He taught me that you NEVER really know what a baby will do at birth regardless of what the ultrasound shows…he had a life limiting condition (trisomy 18) but he looked so strong and had no cardiac or observable brain defects and he was gone in 3 minutes…we had planned Home Hospice care, we were all shocked that he died so fast.

*  that brings up an important point… Our culture argues about abortion – a LOT. We argue about abortion SO much that if you were to gain all of your information about this topic form the media, you might mistakenly think that all perinatal deaths are from abortion. This leaves people thinking that if they don’t get an abortion , their baby will live for sure. This leaves people in a terrible state of shock when they do everything right and their baby dies anyway. Shock, terrible terrible incapacitating shock often follows.   Even if we can take away the death and with it the inevitable sadness…we can share enough facts to cushion the shock and we can inform enough to lessen the terror. That is why I’m here.

photo by Rosanne Rainville

Advertisements

6 Comments

  1. Baby Jo

    I just wish someone had told us that our baby could die at birth… We thought once you made it past the first trimester, and then past the second, that everything would be happy and perfect. No one told us your baby can still die at birth…

  2. Rebecca Summers

    I agree. I thought once I made it past the second trimester I was home free. I never thought my baby would die two weeks before her expected due date. It was never discussed. My ob/gyn never talked about that possibility, even though I’m 41. We never discussed it once. I never even really thought about it. My baby dying that close to her due date? I thought it could never happen to me, not in my family. How tragically wrong I was.

  3. When I originally commented I clicked the “Notify me when new comments are added” checkbox and now each time a
    comment is added I get three e-mails with the same comment.
    Is there any way you can remove people from that service?
    Appreciate it!

    • I will work on it…this part of it isnt what Im good at but I will try to learn how to control the emails ! Thanks for reading !

    • in response to the topic “changing email notification settings”:

      No what I posted was for receiving new posts. To un-follow the comments on a specific post the email received will have a link at the bottom that says subscription options
      note the screen shot http://wpmod.files.wordpress.com/2012/09/2012-09-06_2029.png
      After the reader clicks the link they can find the post and hover their mouse over it and an un-follow link will appear.

      This should solve the problem !

  4. Your own posting, “The other one percent
    | Life and Loss” ended up being well worth writing a comment down
    here in the comment section! Simply just wanted to mention you
    did a very good job. I appreciate it ,Melodee

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: